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• rh: true property: og:title content: Riaan's Newsletter | Riaan Research Initiative | Substack
• rh: true name: twitter:title content: Riaan's Newsletter | Riaan Research Initiative | Substack
• rh: true name: description content: Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org. Click to read Riaan's Newsletter, by Riaan Research Initiative, a Substack publication with hundreds of subscribers.
• rh: true property: og:description content: Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org. Click to read Riaan's Newsletter, by Riaan Research Initiative, a Substack publication with hundreds of subscribers.
• rh: true name: twitter:description content: Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org. Click to read Riaan's Newsletter, by Riaan Research Initiative, a Substack publication with hundreds of subscribers.
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• Happy 6th Birthday, Riaan!
• A rare mama's enlightening ride after Thanksgiving
• Many of us claim to have one. How many of us really do?
• Riaan Visits the Land of Pink Sands
• We Are Never Ready
• Meet Mark and Sarah Pelson
• In suffering, we become children, and the world turns into joy
• Five fathers reflect on parenting a child with Cockayne syndrome
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