celiac.spb.ru
RegisteredAbout the projectSt. Petersburg Celiac Society Emilia is a public organization that has been helping people diagnosed with celiac disease for a quarter of a century. celiac website. spb. ...
celiac.spb.ru Website screenshot
Website Description
About the project
St. Petersburg Celiac Society Emilia is a public organization that has been helping people diagnosed with celiac disease for a quarter of a century. celiac website. spb. ru has become the main information center for those who are faced with the need for a strict gluten-free diet. The history of the project began in 1997, when Irena Romanovskaya created a society to solve the problem of isolation and misunderstanding that patients face.
Today the resource brings together more than a hundred volunteers and experts. This is not just a reference book, but a full-fledged support system where everyone can find answers to questions from where to buy bread to how to apply for benefits. The community turns 25 in 2023, demonstrating its sustainability and real benefits to thousands of families in the region.
Main directions
The activities of the society are divided into several key blocks that cover the different needs of patients:
- Social protection. Thanks to Emilia’s efforts, important legislative issues have been resolved in St. Petersburg. Children diagnosed with celiac disease receive monthly and annual benefits, compensation for meals at school (from 1st to 11th grade) and free holidays at the Green Light camp.
- Information support. The website contains a library of more than 120 publications, methodological recommendations for kindergartens and schools, as well as a closed part of the resource for members of the society.
- Health education. The Society cooperates with leading experts, including Professor M. O. Revnova and L. S. Oreshko. Members of the organization can participate in Gluten Free Living webinars, online master classes and receive expert advice.
- Charity and religion. Emilia's initiative made it possible to organize an Orthodox gluten-free communion and a gluten-free Christmas celebration, which is critically important for religious patients.
Site Features
Celiac resource. spb. ru is distinguished by its practical orientation. There are no abstract slogans here, only specific addresses and contacts of trusted partners. For example, the exact places where you can buy food (store on Lesnoy Prospekt), eat (Benoit Farm) or get tested (Center for Laboratory Medical Diagnostics) are indicated.
The site also serves as a platform for promoting product labeling. The Crossed Ear project and the Eating Away initiative are aimed at making the gluten-free labeling system work in cafes, restaurants and even on board airplanes.
Privileges are provided for active participants: discounts in the LABMD laboratory (10), in the Diet Life store (5) and the Garnets online store (20).Also, members of the society have preferential access to theaters in St. Petersburg, including the Mariinsky Theater and BTK.
Contact information
The organization is based in St. Petersburg. Official website www. celiac. spb. ru is updated regularly, the latest work reports are available in PDF format. The project is led by Chairman of the Board Irena Romanovskaya, and operational activities are coordinated by a team of volunteers and board members, including Evgenia Vasilyeva, Inna Pustylnik and others.
FAQ
How to get social support for a child with celiac disease?
The Emilia Society has initiated the receipt of benefits for children from 0 to 16 years old (monthly) and from 0 to 18 years old (annual). There is also compensation for meals at school and free camping. To register, you must contact the society or use the information on the website.
Where can you get tested for celiac disease in St. Petersburg?
It is recommended to contact the Center for Laboratory Medical Diagnostics (LMD), which is located at: St. Petersburg, Bolshoy pr. PS, 104.
What discounts are available to members of the society?
Members receive 10 discount on diagnostics in the LABMD laboratory, 5 on products in the Diet Life store and 20 on all products in the Garnets online store. There are also discounts on visiting theaters.
Is it possible to receive gluten-free communion?
Yes, the society organizes Orthodox gluten-free communion, as well as gluten-free Christmas celebrations, which allows believers to follow the diet on important religious dates.
Who are the experts on celiac disease in Russia?
Among the key experts is Doctor of Medical Sciences, Professor M. O. Revnova, who has been diagnosing and treating celiac disease in children since 1995, as well as Doctor of Medical Sciences. prof. L. S. Oreshko and Ph.D. , assistant professor A. M. Shabalov.
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